Try to use those times that you do go out to put aside the problems you have to deal with on an every day basis. It was a party so that would put a damper on things if you said you feel crappy most of the time. People are just greeting you anyway they don't want to hear your life's problems. I think Kay's reply is great, answering so so, then ask how they are doing. It would be good also to have someone you can talk with about these things. I know it's easier said than done but try to live in the moment and get the most out of it.
Phylis Feiner Johnson I think Kay's reply is great, answering so so, then ask how they are doing. Phylis Feiner Johnson This is not party oriented, but I feel strongly that if you have good friends, you need to tell them.for your benefit and theirs. If your true friends don't want to deal with it.they're not such good friends. They were scared silly.and if they had known I had epilepsy, they would have known it was (only?) a seizure.they would be able to do the appropriate thing.and be supportive of me.
And, of course, they didn't have a clue what to do. I used to not tell anyone and then when I passed out, they'd freak and think I had dropped dead or something. This is not party oriented, but I feel strongly that if you have good friends, you need to tell them.for your benefit and theirs. Plus, chances are a lot of the others at social gatherings are not "good" themselves but lying just as much as us! Human nature. Unfortunately lying/putting on an act often goes with the territory. It's long been automatic to give a casual smile and make out it's no big deal. If it's people who do know and they ask me specifically I do tend to downplay it, or "same as always". If it's around people who don't know I have epilepsy then it's none of their business. I'll do the "good, ok thanks" thing depending on the situation. I'm inclined to say "oh, so-so, what about you?" and it seems to avoid any probing questions. "Long story" and turning the question back on the other person is perfect. Yep, it's horrible having to do the lying thing, and you're right, the party wasn't the best environment to elaborate on your situation. Whats a good way to respond without lieing and without sounding like negative nancy? Last night I just sorta beat around the bush and said things like "thats a long story, whats going on with you? It's not that I care if they know, but its a conversation for a different environment. I wont lie and say "GOOD!" like theyre expecting to hear, but I also dont want to be negative nancy and tell them the truth either. When approached, they would explain what a surprise it is to see me, that it was good to see me, and then the obligatory question everyone asks everyone regardless of their health "so, how you doing? How have you been?" I saw people I hadnt seen in years-surprisingly I actually recognized some of them.
However, last night I joined a friend and some of his common friends to celebrate his birthday. I rarely feel well enough to enjoy going out anymore. I used to go out with friends a lot-probably too much really :0). Many years ago before my condition deteriorated to what it is today, I used to be a very social person.
0 kommentar(er)
